Hello dear friends!
Apologies for the delay in writing recently, but we have been quite busy.
I have also not felt the need to.
My depression and grief has eased.
Scott said to me recently "It is weird without you blogging. People are actually asking how we are, because they don't know!".
Anyway.....
After writing for so long about my emotions of a parent of a child with a terminal disability (2010) and health issue AND another child with a serious health issue (2013)......
I do not know what angle I should take here now.....
Scott's new job that is directly helping those with a disability....?
(It is awesome!)
Tom's new role of being male and entering puberty...…
OR
having difficulty at school suddenly....
Tom may have met his match with his teacher!
OR......
traveling Interstate on his own...….
OR...…..
choosing a High School perfect for himself ?
Amelia's new role of having carers for 6 months and deciding they are better than me (don't stress. I do not take offence)...…
Clashing with people and standing up for her rights...……..
"I am not a baby. Tell them not to talk to me like that!"
Talking to carers regularly about Amelia's future and the pathway she wants to take now and in the future ?
Recently at school, Amelia was asked to create a "Business Name".
She said "Cool and Sassy"
PERFECT for her personality right now!
She is VERY snappy!
My battle with ….. EVERYTHING and WHATEVER!
My battle with depression, anxiety and saying goodbye to my career (that I worked VERY hard for).
My battle with Amelia and Tom shoving me aside, as I ask others to enter and assist.
NDIS has been awesome, BUT a massive workload.
Soooooo much to organise and approve through the proper channels.
I have listed what I want for Amelia (she added lots too) and now we need to get the proper assessments for it all.
I WILL SUCCEED.
Our amazing friend, also with A-T, , a few hours away, turned 21 today.
"THEY NEVER SAID I WOULD LIVE THIS LONG" Caitlin Caruso said.
Exactly what we were told.
HAPPY BIRTHDAY CAITLIN.
As with any kid that we meet or enters our house, we adore you!
Maybe we will watch Descendents 3 together soon!
I and We are good and not good.
As with any teenager (especially one who is desperate for Independence!)
Sorry.
VERY blaze and non descriptive.
But we are tired.
We are busy.
We are good xxx
